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Take Action! Please take ACTION TODAY on Proposed Substitute Bill No. 325:
an act concerning Medicaid recipients with complex medical needs.

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Gaylord SCI Support Group: Adaptive Driving - July 21, 2014
     Posted July 2014

Gaylord Hospital invites you to join Tim Fournier from Advanced Wheels as he presents: Adaptive Driving

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Save the Date: Annual Wheeling & Able Golf Classic: Sept 25, 2014
     Posted July 2014

Come out for a great day of golf on one of New England's finest public courses to benefit the programs and services of the Connecticut Chapter of the National Spinal Cord Injury Association (NSCIA-CT).

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Paraplegic in an exoskeleton opens the World Cup -- with a kick
     posted June 2014

Juliana Pinto, a 29-year-old paraplegic, was one of eight patients chosen for the opening ceremony after extensive training in a lab in Sao Paulo.

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Free lifetime pass for National Parks for disabled U.S. citizens

Did you know that US citizens and permanent residents with disabilities are eligible for a lifetime Access Pass that provides free access to more than 2,000 recreation sites managed by five Federal agencies?

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Stimulation restores some function for 4 paralyzed men
Karen Weintraub, Special for USA TODAY      April 8, 2014

An electrical device implanted in the backs of four paralyzed men has helped them move their legs, hips and toes during experimental research. It's a promising development for paralysis treatment, but doctors warn it isn't a cure. 

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Proposed Substitute Bill No. 325

“Please take ACTION TODAY on Proposed Substitute Bill No. 325:  AN ACT CONCERNING MEDICAID RECIPIENTS WITH COMPLEX MEDICAL NEEDS. 

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Repair Stem Cells Institute Announces "Double Benefits for SCI" Stem Cells Treatment
     Posted April2014

RSCI’s one-day treatment program in Florida, USA, is priced to bring stem cell treatment benefits to the greatest possible number of SCI patients.

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Tobii EyeMobile: Control Windows 8 tablets using only your eyes
spinal cord injury zone      Posted March 2014

Now, navigating and controlling nearly any modern, off-the-shelf Windows 8 Pro tablet can be done with the simple, natural and relaxed movement of the eyes. 

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Take this Adaptive Sports Survey!
     Posted February 2014

This survey includes questions that pertain to your personal life, health, and experiences with adaptive sports. Open until April 30, 2014.

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For Immediate Action! Your Rights Are Taken!
From NCART      February 2014

Implementation of Rushed “Customized Wheelchair” Regulation Must Be Delayed

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Seniors initially denied motorized wheelchairs receive them
     February 2014

An NSCIA CT board member and a local seating and mobility company helped to obtain funding for a new and necessary wheelchairs.   

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Adaptive Snowboarding and Other Winter Sports
Posted By: Pete Benda - daddiesboardshop.com      Jan 29, 2014

Whether you were born with a disability or received it after an injury, it should never prevent you from enjoying life and the excitement of sports. From soccer and basketball to more extreme sports, like snowboarding, skiing, and dirt biking, there is something to fit everyone's style. 

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TEK Robotic Mobilization Device: designed to replace wheelchairs
     January 2014

The TEK Robotic Mobilization Device is a machine developed to replace the wheelchair. In this demonstration video, we see a man with a severe injury to his spinal cord able to move about in ways that a wheelchair would make very difficult.

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Tongue piercing lets paralyzed drive wheelchairs
Lauran Neergaard - AP      January 2014

An experimental device is letting paralyzed people drive wheelchairs simply by flicking their tongue in the right direction.

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Are You Suffering with Pain?
ConnCord, Winter 2014     

The Translational Pain Research Group at the Brigham and Women’s Hospital is
seeking individuals with pain as a result of Spinal Cord Injury to participate in a
research study.

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Are you the romantic partner of someone with SCI?
     Posted November 2013

Take this brief anonymous survey to provide research on caregivers and partners of Spinal Cord Injured individuals.

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Got SCI Questions? We've Got Answers!

Introducing the NSCIA CT Chapter Blog & Forum. Current topic: experts from Gaylord Specialty Healthcare discuss the EKSO.

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What do you need to know about living with a Spinal Cord Injury?

Tell us what you think in this brief survey!

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East Granby Company Knows An Inspirational Story When It Sees One
Susan Schoenberger Granby-E Granby Patch      Posted July 2013

Advanced Wheels recognizes contest winner Zackary Capitao with prizes and a donation to the charity of his choice!

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Senate Bill Introduced To Create Separate Benefit Category for Complex Rehab Technology

Senators Chuck Shumer and Thad Cochran Join In Bipartisan Introduction of Senate Companion Bill S. 948

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Ekso Bionics' robotic suit eyes-on (video)
Steve Dent - Engadget     

Since last we saw the Ekso Bionics robotic suit, which helps folks with lower-extremity paralysis or weakness to stand up and walk, the $110,000 exoskeleton has been on the market for about a year.

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NCART: Schumer to Introduce Senate Bill for Separate Benefit Category
     posted April 2013

Sen. Chuck Schumer (D-N.Y.) will introduce a Senate companion bill to provide a separate Medicare benefit category for complex rehab technology (CRT).

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3rd Annual Wheeling and Able Shelton Riverwalk Wheel/Walk for Fitness
Bill Mancini      Posted February 2013

The Third Annual Wheeling and Able Shelton Riverwalk Wheel/Walk for Fitness was held on Sunday, October 7, 2012 at 10:00 am in Shelton, CT.

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All-terrain chairs open doors
Ben Jones, USA TODAY      December 27, 2012

Kurt Johnston, 28, of Osh Kosh, has gone turkey hunting in his chair in the fields and forests of Wisconsin. It's cool, he says. We tell everyone it looks like a tank.

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Nobel Winners Unlocked Cells Unlimited Potential
     posted October 2012

The two scientists who won this year's Nobel Prize in Physiology or Medicine discovered that cells in our body have the remarkable ability to reinvent themselves.

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UK Paraplegic Woman Uses Robotic Suit to Walk
http://www.newsmax.com/SciTech/paraplegic-woman-robotic-suit/2012/09/04/id/450768      posted September 2012

A British woman paralyzed from the chest down by a horse riding accident has become the first person to take home a robotic exoskeleton that enables her to walk.

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CT Chapter teams up with Powerful Tools for Caregivers
     Posted August 2012

The Powerful Tools for Caregivers (PTC) program is a 6 week course that empowers caregivers to address their challenges more effectively. The NSCIA CT Chapter is teaming up with PTC to offers these courses throughout the state.

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SCI Total Fitness Program Breaks Down the Barriers of Exercise For People with Spinal Cord Injury
kristin@scitotalfitness.com      July 10, 2012

SCI Total Fitness, an exercise ideology created by Physical Therapist Kristin McNealus, has launched the first online exercise program for people with spinal cord injuries.

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Paralyzed Rats Learn to Walk Again In Rehabilitation Experiment
Samantha Grossman TIme Magazine      posted June 2012

Swiss scientists have restored mobility to rats paralyzed by spinal cord injuries, a development that could inspire new hope for people who've suffered from similar debilitation.

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A Research Study in Spinal Cord Injury
     Posted May 2012

Researchers at Gaylord Hospital, Hospital for Special Care and Boston University are conducting a study looking at quality of life after a spinal cord injury, a traumatic brain injury, or diagnosis of cerebral palsy.

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Gaylord Sports Association has become Paralympic Sport Club of Southern New England
     posted February 2012

This prominent designation not only gives national visibility to Gaylord Hospital for the established adaptive sports that we currently provide, but will enhance our existing programming and broaden the scope of adaptive sports to the elite level.

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Compressed Natural Gas Fueling Station Opens at Metro Taxi

Metro Taxi, Connecticut’s largest, full-service taxi company, recently unveiled a Compressed Natural Gas (CNG) fueling station and rolled out its new Metro Access wheelchair-accessible taxi that is powered by CNG.

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Inaugural NSCIA/ABLE to Travel Membership Cruise -March 03, 2013
     posted January 2012

United Spinal's accessible travel guru Mary Peterson has worked hard on this membership benefit to reserve all the ship’s accessible cabins, and we are offering this special deal to your local members before we promote it more broadly to our members at large, but we need you to act fast!

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Mount Sinai Rehabilitation Hospital Spinal Cord Injury Informational Series
     posted January 2012

Save the Date: Wednesday, January 18, 2012
4:30 – 6:30 p.m.

Guest: Elanah Sherman from the State Office of Protection and Advocacy for Person’s With Disabilities (ADA, Lemon Law, Voting Rights)

Meeting Location: Mount Sinai Rehabilitation Hospital 490 Blue Hills Ave, Hartford, CT.

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2011 ANNUAL HOLIDAY GATHERING
     Posted December 2011

  • When: Wednesday, December 21th 4:30-7pm
  • Where: Mount Sinai Rehabilitation Hospital, 4th Floor Gym
  • 490 Blue Hills Ave, Hartford, CT

    We will be celebrating the season with music and a fun filled “Yankee swap”. We request that everyone sign up to bring an appetizer or dessert to share. The Yankee swap is optional. If you choose to participate in the swap, please bring a wrapped item (valued at $10.00-15.00). Dinner will be provided.
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    Landmark Spinal Repair Stem Cell Trial
    Rupert Shepherd - Medical News Today      November 21, 2011

    The fifth and final patient in the Geron Corp sponsored trial of a human embryonic-stem-cell-derived treatment for severe spinal cord injury was treated on Nov. 16. at the Stanford University School of Medicine and Santa Clara Valley Medical Center.

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    CT Access for All: Wheelchair Accessible Taxi Initiative
         Posted December 2011

    In 2009, legislation was passed permitting wheelchair accessible taxis in the state of Connecticut and in 2010 Connecticut Clean Cities received a grant for alternative fuel vehicles. But in October 2011, the CT DOT denied both applications and granted no additional permits.

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    Lack Of Accessible Cabs Doesn’t Sit Well With Senator
    By Michelle Diament      November 18, 2011

    More than two decades after the passage of the Americans with Disabilities Act, one of the chief architects of the legislation is looking to eliminate transportation hurdles that people with disabilities continue to face.

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    Have you had trouble getting the Complex Rehab Technology equipment you need?
         Posted November 2011

    CELA 2012 is an opportunity for you to meet with your Members of Congress, in Washington, DC, to discuss these issues. Consumer Advocate scholarships, including airfare, ground transportation, lodging and meals are available.

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    The Annual Wheeling and Able Golf Classic has another successful year!
    Bill Mancini / David Morgana      Posted November 2011

    A field of golfers took off on September 13th for the 12th Annual Wheeling and Able Golf Classic at Lyman Orchards in Middlefield. A special thanks to Eastern Rehabilitation Network for sponsoring another year of Golf for a GREAT Cause! Thank you to all our corporate sponsors and to the golfers who participated this year! It's because of your continued support and generosity that the chapter is able to continue our work!

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    Grand opening: Metro Taxi CNG clean energy station
         posted October 2011

    The NSCIA CT Chapter helped celebrate the Grand Opening of Metro Taxi’s public access compressed natural gas station on Monday September 19, 2011. Click below for more pictures and information.

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    NSCIA Supports CT Team Reeve 2nd Annual Roll-A-Thon
         posted October 2011

    The CT Chapter of NSCIA supported the CT Team Reeve 2nd Annual Roll-A-Thon on Sunday September 25, 2011. A great many people attended the event in Hartford's Bushnell Park, participating in adaptive sports and a wheelchair course through the park. Participants received information from our chapter and we signed up 11 new members.

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    Save the Date: Shelton Riverwalk Wheel / Walk for Fitness

    OCTOBER 2, 2011 - Shelton, CT

  • Wheel/Walk cost is $20.
  • Become a Riverwalk Captain just by recruiting 9 others to register online under your Team Name.
  • Riverwalk Captains will receive Exclusive Captain Rewards at the event.
    Click Below for full Event Details

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    More Than Walking: filmaker's SCI joureny
         Posted August 2011

    Jonathan Sigworth - the youngest of three brothers - received a spinal cord injury at age 19 while studying in northern India in February 2006.

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    Transit cuts: Public Hearing Schedule for Fare Increase/Service Reduction
         Posted August 2011

    The Connecticut Department of Transportation will hold public hearings to receive comments on proposed rail, public transit bus, express commuter bus, ADA paratransit fare increases (effective on or after November 1, 2011) and proposed reductions in bus and rail service. The proposed new bus fares will affect local bus systems serving the areas of Hartford, New Haven, Stamford, Waterbury, New Britain, Meriden, Bristol and Wallingford....

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    Research Study: Are you living with a long-term incomplete Spinal Cord Injury?
         Posted August 2011

    The purpose of this study is to describe any changes in physical function that people with an incomplete SCI may have as they go through middle age.

    To be eligible for this study you must:

    1. Have had a traumatic incomplete spinal cord injury at least 15 years ago
    2. Be 35 to 65 years old
    3. Be able to read or speak English

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    6th Annual SCI/CARP Pot-luck Cookout on the CT River

    Wednesday, August 17th, 2011 at 5:00 p.m.
    CARP rowing on the CT River This cookout is open to all persons with a Spinal Cord Injury, family, friends and CARP Members. This program is co-sponsored by the National Spinal Cord Injury Association, Connecticut Chapter and facilitated by Bryan Tronosky, PT, Nicole Burdick, OTR/L and Paige McCullough-Casciano, CTRS from Mount Sinai Rehabilitation Hospital.

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    For people in wheelchairs, calling a cab is not an easy option
    Arielle Levin Becker - CT Mirror      July 19, 2011

    When Charles Smyth's sister called to say that their mother was dying and he should get to her bedside quickly, Smyth had another problem to deal with first: How to get to the hospital. Smyth is paralyzed and uses a wheelchair. He regularly takes a paratransit service for people with disabilities, but it must be booked at least a day in advance. On that day, he called to see if the company would make an exception. It wouldn't. He scoured the Yellow Pages for an alternative.

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    Save the Date: 2011 Wheeling & Able Golf Classic
    September 13, 2011     

    Wheeling & Able Golf Classic Come out for a great day of golf on one of New England’s finest public courses to benefit the programs and services of the Connecticut Chapter of the National Spinal Cord Injury Association (NSCIA-CT). Funds raised at the 12th Wheeling and Able Golf Classic will stay in CT to help those who have suffered a SCI and will help supplement statewide education and outreach programs.

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    Upper Limb Robotic Training Study in Spinal Cord Injury
         Posted June 2011

    The purpose of this study is to investigate the mechanisms of motor recovery in patients with chronic loss of function in the upper-limb after Spinal Cord Injury, and to characterize the neurophysiological profile of patients and specific muscles that respond to robotic training by using non-invasive brain stimulation , Transcranial Magnetic Stimulation(TMS). We aim to investigate if arm muscle strength and function improve through innovative visual-sensory-motor upper-limb robotic training.

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    Quadriplegic Participants Needed For Research Study
    Massachusetts General Hospital      Posted April 2011

    Patients who are quadriplegic from spinal cord injury,brainstem stroke, muscular dystrophy, or motor neuron disease such as amyotrophic lateral sclerosis (ALS) and have no or limited use of their hands are needed for an FDA regulated research study to evaluate a new technology which may allow an individual with quadriplegia to control a computer cursor by thought. This study is invasive and requires surgery.

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    StemCells, Inc. Initiates World’s First Neural Stem Cell Trial in Spinal Cord Injury
    stemcellsinc.com      Posted: March 2011

    StemCells, Inc. (Nasdaq:STEM) announced today the initiation of a Phase I/II clinical trial of its proprietary HuCNS-SC(R) human neural stem cells in chronic spinal cord injury. This trial is now open for enrollment, and will accrue patients with both complete and incomplete degrees of paralysis who are three to 12 months post-injury. The trial is being conducted in Switzerland at the Balgrist University Hospital, University of Zurich, a world leading medical center for spinal cord injury and rehabilitation.

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    First patient treated in embryonic stem cell trial
    Maggie Fox, Health and Science Editor, Reuters      posted October 2010

    WASHINGTON — U.S. doctors have begun treating the first patient to receive human embryonic stem cells, but details of the landmark clinical trial are being kept confidential, Geron Corp said on Monday. Geron has the first U.S. Food and Drug Administration license to use the controversial cells to treat people, in this case patients with new spinal cord injuries. It is the first publicly known use of human embryonic stem cells in people.

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    Robotic Legs Get Wheelchair Users Walking
    by Leslie Katz, CNET Gadget Blog      Posted July 2010

    A new pair of robotic legs out of New Zealand Rex,lets wheelchair users do the improbable--stand, walk, and even go up and down stairs. Users transfer themselves from their chair into the Robotic Exoskeleton (Rex) by holding on to Rex's legs. They then strap themselves in and use a hand-controlled joystick and control pad to maneuver the battery-powered mobility-assist device on solid, stable surfaces such as those inside the home or workplace.

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    Tee Up with 'Golfers in Motion'
         posted May 2010

    Mount Sinai Rehabilitation in collaboration with Wintonbury Hills Golf Course & Willowbrook Golf Course present an opportunity to Tee up with us!
    Golfers In Motion is designed to serve a wide variety of recreational and competitive golfing enthusiasts with physical disabilities.
    It is an 8 week program from April 12th - June 14th to be held on Monday afternoons from 1:00––3:00 p.m. at Mt. Sinai Rehab Hospital in Hartford, CT.

    More...
    CT Adaptive Rowing Program Gets Ready for 2010 Season
         Posted April 2010

    On Wednesday May 26th, Mount Sinai Rehabilitation Hospital in CT Adaptive Rowing Program collaboration with Riverfront Recapture, Inc. and the National Spinal Cord Injury Association, Connecticut Chapter present an opportunity to Learn to row with us!

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    1st Annual SCIACT Twilight Gala is a Success!
    Bill Mancini      posted Feb 2010

    I would just like to thank everyone for helping out and attending the first Annual Twilight Gala. Overall the event was a tremendous success. For a first time out event the final total is not what is important. Its the enthusiasm and support everyone showed. From the hard work the committee did to the support we got from the Marriott the night of the event. I could not ask for anything more.
    - Bill Mancini, V.P. NSCIA CT Chapter

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    Soul Legend Teddy Pendergrass Dies After Battle with Colon Cancer
    By Suzanne Dixon, MPH, RD, About.com      January 14, 2010

    Soul singer and legend Teddy Pendergrass has died at age 59, eight months after surgery for colon cancer.Colon cancer was not the only health challenge faced by Pendergrass in his life. In 1982, a car accident left him paralyzed from the waist down.

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    Health-related quality of life among individuals with long-standing spinal cord injury
    MedWorm: Consumer Health News      Jan 04, 2010

    The study findings showed that veterans with SCI experienced lower HRQOL than their non-veteran counterparts. A qualitative study is recommended to evaluate why HRQOL was lower in veterans than in non-veterans with SCI although veterans had higher incomes as a result of their pensions and increased access to equipment, and medications.

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    Sold Out Field Comes Out Swinging for SCI
    Ellen Franks      11/12/2009

    A sold out field of golfers took off on September 15th for the 10th Annual Wheeling and Able Golf Classic at Lyman Orchards in Middlefield. The weather was spectacular, and that in itself is a celebration as the previous two tournaments saw horrific rain! Helen Reeve, Christopher Reeve’s stepmother, was our special guest.

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    Connecticut Loses a Great Advocate
    Jim Quick      Posted October 19, 2009

    Tom Connors was one of the heroes of the Disability Rights Movement that began as a “grassroots movement” for civil rights and independence for people with disabilities that eventually realized sweeping legal victories over the years.

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    Paralyzed Rats Walk Again
    Jennifer Thomas - Healthday Reporter      September 20, 2009

    (HealthDay News) -- A three-pronged approach to treating spinal cord injuries allowed paralyzed rats to walk without receiving signals from the brain, scientists report. The combined treatment enabled the rats to walk with a near-normal gait on a treadmill, without the muscles receiving signals from the brain.

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    Film
         Posted August 2009

    Filmmaker Jon Sigworth will present two Connecticut screenings of his recently completed SCI documentary “More Than Walking”, August 13 in New Haven and August 31 in Hamden.

    More...
    SCI / MS Research Study
    You may be eligible to participate.      Posted July 2009

    - Care Call, a phone-based intervention, aims to reduce health problems and improve quality of life for people with SCI or MS.
    -You will not need to travel to take part in this study; you may stay in your home.
    -You will receive $100 for your participation and completion of the study.

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    Assistive Technology Demo Center Opens in Eastern CT
         Posted June 2009

    The Eastern Connecticut Assistive Technology Center located at the Windham Regional Community Council, 872 Main Street in Willimantic, CT will open on June 24th! The Connecticut Tech Act Project is very excited to have a new partner agency offering Assistive Technology demonstrations in the Eastern Region of Connecticut.

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