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Landmark Spinal Repair Stem Cell Trial
Rupert Shepherd - Medical News Today November 21, 2011
The fifth and final patient in the Geron Corp sponsored trial of a human embryonic-stem-cell-derived treatment for severe spinal cord injury was treated on Nov. 16. at the Stanford University School of Medicine and Santa Clara Valley Medical Center.
Geron, based in Menlo Park, Calif., developed and manufactured the cells. Although Geron has discontinued the trial, the company will continue to monitor the five patients who have received the cells for a total of 15 years and is actively looking for partners to "enable further development of its stem cell programs."
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GOV. MALLOY PROPOSES ADDITIONAL AGENCY CONSOLIDATIONS
Beth A. Leslie Posted February 2012
Governor Malloy has proposed merging the Office of Protection and Advocacy for Persons with Disabilities (P&A) with the Commission on Human Rights and Opportunities (CHRO). The new agency would be called the Department on Human Rights, Protection and Advocacy. The P&A Director would continue to be appointed by the Governor. The CHRO Director would continue to be appointed by the Commission.
Click Below to read Governor Malloy's Press Release:
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Paraplegic Man Stands, Steps with Assistance and Moves His Legs Voluntarily
christopherreeve.org Posted: May 2011
A team of scientists at the University of Louisville, UCLA and the California
Institute of Technology has achieved a significant breakthrough in its initial work with a paralyzed male volunteer at Louisville's Frazier Rehab Institute. It is the result of 30 years of research to find potential clinical therapies for paralysis.
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More Than Walking: filmaker's SCI joureny
Posted August 2011
 Jonathan Sigworth - the youngest of three brothers - received a spinal cord injury at age 19 while studying in northern India in February 2006. Though the injury left him paralyzed in his hands and below his arms, Jonathan and his family continue to coordinate with staff at India’s Spinal Injuries Center in Delhi - where Jonathan received treatment - in order to initiate efforts that support SCI persons who are in the process of rehabilitation and seeking independence. ESCIP is the unofficial name for these efforts.
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CT Access for All: Wheelchair Accessible Taxi Initiative
Posted December 2011
In 2009, legislation was passed permitting wheelchair accessible taxis in the state of Connecticut and in 2010 Connecticut Clean Cities received a grant for alternative fuel vehicles from the Clean Cities Future Fuels Project, funded by the U.S. Department of Energy, allowing Metro Taxi and Yellow Cab to purchase 140 new wheelchair accessible CNG purpose-built taxis called the ‘MV-1’. Unfortunately, in October 2011, the CT Department of Transportation denied both applications and granted no additional permits!
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Have you had trouble getting the Complex Rehab Technology equipment you need?
Posted November 2011
CELA 2012 is an opportunity for you to meet with your Members of Congress, in Washington, DC, to discuss these issues. Consumer Advocate scholarships, including airfare, ground transportation, lodging and meals are available.
For additional information and to complete and submit an application, please follow this link. Application deadline is December 15, 2011. Those awarded scholarships will be notified on or before February 1, 2012.
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2011 ANNUAL HOLIDAY GATHERING
Posted December 2011
When: Wednesday, December 21th 4:30-7pm
Where: Mount Sinai Rehabilitation Hospital,
4th Floor Gym
490 Blue Hills Ave, Hartford, CT
We will be celebrating the season with music and a fun filled “Yankee swap”. We request that everyone sign up to bring an appetizer or dessert to share. The Yankee swap is optional. If you choose to participate in the swap, please bring a wrapped item (valued at $10.00-15.00). Dinner will be provided.
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Research Study Opportunity: Quality of Life with SCI
Posted December 2011
 The Boston University Health and Disability Research Institute is looking for individuals ages 14 to 25 who have a diagnosis of traumatic Spinal Cord Injury (SCI) to participate in a questionnaire study looking at Quality of Life after a SCI. We want to learn about how SCI affects people’s lives.
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Mount Sinai Rehabilitation Hospital Spinal Cord Injury Informational Series
posted January 2012
Save the Date: Wednesday, January 18, 2012
4:30 – 6:30 p.m.
Guest: Elanah Sherman
from the
State Office of Protection and Advocacy for Person’s
With Disabilities
(ADA, Lemon Law, Voting Rights)
Meeting Location: Mount Sinai Rehabilitation Hospital
490 Blue Hills Ave, Hartford, CT.
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Inaugural NSCIA/ABLE to Travel Membership Cruise -March 03, 2013
posted January 2012
 United Spinal's accessible travel guru Mary Peterson has worked hard on this membership benefit to reserve all the ship’s accessible cabins, and we are offering this special deal to your local members before we promote it more broadly to our members at large, but we need you to act fast!
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Compressed Natural Gas Fueling Station Opens at Metro Taxi
 Opening Features New Metro Access CNG-Powered, Wheelchair-Accessible Taxi Fleet. Metro Taxi, Connecticut’s largest, full-service taxi company, recently unveiled a Compressed Natural Gas (CNG) fueling station and rolled out its new Metro Access wheelchair-accessible taxi that is powered by CNG. The taxi comfortably seats four passengers and includes space for two wheelchairs.
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Gaylord Sports Association to host 2 Adaptive Cross Country Ski Clinics
posted January 2012
 For the first time ever, the Sports Association is pleased to team up with the New England Nordic Ski Association in February to bring to you two Adaptive Cross-Country Ski Clinics right here in Connecticut!
February 8 and 15 from 1:00 – 3:00 PM at the beautiful Winding Trails in Farmington.
These clinics are dependent on weather, snow conditions and registrations.
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Lack Of Accessible Cabs Doesn’t Sit Well With Senator
By Michelle Diament November 18, 2011
More than two decades after the passage of the Americans with Disabilities Act, one of the chief architects of the legislation is looking to eliminate transportation hurdles that people with disabilities continue to face.
At a U.S. Senate hearing Thursday, Sen. Tom Harkin, D-Iowa, lamented the lack of accessible taxis even in the nation’s biggest cities and sympathized with Americans with disabilities who struggle daily to get from point A to point B.
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Upper Limb Robotic Training Study in Spinal Cord Injury
Posted June 2011
The purpose of this study is to investigate the mechanisms of motor recovery in patients with chronic loss of function in the upper-limb after Spinal Cord Injury, and to characterize the neurophysiological profile of
patients and specific muscles that respond to robotic training by using
non-invasive brain stimulation , Transcranial Magnetic Stimulation(TMS).
We aim to investigate if arm muscle strength and function improve through innovative visual-sensory-motor upper-limb robotic training.
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Quadriplegic Participants Needed For Research Study
Massachusetts General Hospital Posted April 2011
Patients who are quadriplegic from spinal cord injury,brainstem stroke, muscular dystrophy, or motor neuron
disease such as amyotrophic lateral sclerosis (ALS) and have no or limited use of their hands are needed for an
FDA regulated research study to evaluate a new technology which may allow an individual with quadriplegia to control a computer cursor by thought. This study is invasive and
requires surgery.
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Research Study: Are you living with a long-term incomplete Spinal Cord Injury?
Posted August 2011
The purpose of this study is to describe any changes in physical function that people with an incomplete SCI may have as they go through middle age.
To be eligible for this study you must:
- Have had a traumatic incomplete spinal cord injury at least 15 years ago
- Be 35 to 65 years old
- Be able to read or speak English
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Transit cuts: Public Hearing Schedule for Fare Increase/Service Reduction
Posted August 2011
The Connecticut Department of Transportation will hold public hearings to receive comments on proposed rail, public transit bus, express commuter bus, ADA paratransit fare increases (effective on or after November 1, 2011) and proposed reductions in bus and rail service.
The proposed new bus fares will affect local bus systems serving the areas of Hartford, New Haven, Stamford, Waterbury, New Britain, Meriden, Bristol and Wallingford....
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StemCells, Inc. Initiates World’s First Neural Stem Cell Trial in Spinal Cord Injury
stemcellsinc.com Posted: March 2011
StemCells, Inc. (Nasdaq:STEM) announced today the initiation of a Phase I/II clinical trial of its proprietary HuCNS-SC(R) human neural stem cells in chronic spinal cord injury. This trial is now open for enrollment, and will accrue patients with both complete and incomplete degrees of paralysis who are three to 12 months post-injury. The trial is being conducted in Switzerland at the Balgrist University Hospital, University of Zurich, a world leading medical center for spinal cord injury and rehabilitation.
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NSCIA Supports CT Team Reeve 2nd Annual Roll-A-Thon
posted October 2011
The CT Chapter of NSCIA supported the CT Team Reeve 2nd Annual Roll-A-Thon on Sunday September 25, 2011. A great many people attended the event in Hartford's Bushnell Park, participating in adaptive sports and a wheelchair course through the park. Participants received information from our chapter and we signed up 11 new members.
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2011 CT Chapter Annual Picnic
June 2011
Saturday June 18, 2011 - 12-3pm
The NSCIA Ct Chapter presents our annual picnic at Gaylord Hospital. The Chapter will be providing a mini expo. Area venders will be providing information. Ballots for next years board of directors will be provided at the picnic.
The picnic will be catered by Seasons Catering. Come out and enjoy!!!
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The Annual Wheeling and Able Golf Classic has another successful year!
Bill Mancini / David Morgana Posted November 2011
 A field of golfers took off on September 13th for the 12th Annual Wheeling and Able Golf Classic at Lyman Orchards in Middlefield. A special thanks to Eastern Rehabilitation Network for sponsoring another year of Golf for a GREAT Cause! Thank you to all our corporate sponsors and to the golfers who participated this year! It's because of your continued support and generosity that the chapter is able to continue our work!
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6th Annual SCI/CARP Pot-luck Cookout on the CT River
Wednesday, August 17th, 2011 at 5:00 p.m.
This cookout is open to all persons with a Spinal Cord Injury, family,
friends and CARP Members. This program is co-sponsored by the National Spinal Cord Injury Association, Connecticut Chapter and facilitated by Bryan Tronosky, PT, Nicole Burdick, OTR/L and Paige McCullough-Casciano, CTRS from Mount Sinai Rehabilitation Hospital.
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First patient treated in embryonic stem cell trial
Maggie Fox, Health and Science Editor, Reuters posted October 2010
WASHINGTON — U.S. doctors have begun treating the first patient to receive human embryonic stem cells, but details of the landmark clinical trial are being kept confidential, Geron Corp said on Monday.
Geron has the first U.S. Food and Drug Administration license to use the controversial cells to treat people, in this case patients with new spinal cord injuries. It is the first publicly known use of human embryonic stem cells in people.
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Save the Date: 2011 Wheeling & Able Golf Classic
September 13, 2011
Come out for a great day of golf on one of New England’s finest public courses
to benefit the programs and services of the Connecticut Chapter of the National Spinal Cord Injury Association (NSCIA-CT).
Funds raised at the 12th Wheeling and Able Golf Classic will stay in CT to help those who have suffered a SCI and will help supplement statewide education and outreach programs.
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Save the Date: Shelton Riverwalk Wheel / Walk for Fitness
OCTOBER 2, 2011 - Shelton, CT
Wheel/Walk cost is $20.
Become a Riverwalk Captain just by recruiting 9 others to register online under your Team Name.
Riverwalk Captains will receive Exclusive Captain Rewards at the event.
Click Below for full Event Details
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Robotic Legs Get Wheelchair Users Walking
by Leslie Katz, CNET Gadget Blog Posted July 2010
A new pair of robotic legs out of New Zealand  lets wheelchair users do the improbable--stand, walk, and even go up and down stairs. Users transfer themselves from their chair into the Robotic Exoskeleton (Rex) by holding on to Rex's legs. They then strap themselves in and use a hand-controlled joystick and control pad to maneuver the battery-powered mobility-assist device on solid, stable surfaces such as those inside the home or workplace.
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Paralyzed Rats Walk Again
Jennifer Thomas - Healthday Reporter September 20, 2009
(HealthDay News) -- A three-pronged approach to treating spinal cord injuries allowed paralyzed rats to walk without receiving signals from the brain, scientists report. The combined treatment enabled the rats to walk with a near-normal gait on a treadmill, without the muscles receiving signals from the brain.
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Connecticut Loses a Great Advocate
Jim Quick Posted October 19, 2009
Tom Connors was one of the heroes of the Disability Rights Movement that began as a “grassroots movement” for civil rights and independence for people with disabilities that eventually realized sweeping legal victories over the years.
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CT Adaptive Rowing Program Gets Ready for 2010 Season
Posted April 2010
On Wednesday May 26th, Mount Sinai Rehabilitation Hospital in 
collaboration with Riverfront Recapture, Inc. and the National Spinal Cord Injury Association, Connecticut Chapter present an opportunity to Learn to row with us!
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For people in wheelchairs, calling a cab is not an easy option
Arielle Levin Becker - CT Mirror July 19, 2011
When Charles Smyth's sister called to say that their mother was dying and he
should get to her bedside quickly, Smyth had another problem to deal with first: How to get to the hospital.
Smyth is paralyzed and uses a wheelchair. He regularly takes a paratransit service for people with disabilities, but it must be booked at least a day in advance. On that day, he called to see if the company would make an exception. It wouldn't. He scoured the Yellow Pages for an alternative.
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Grand opening: Metro Taxi CNG clean energy station
posted October 2011
The NSCIA CT Chapter helped celebrate the Grand Opening of Metro Taxi’s public access compressed natural gas station on Monday September 19, 2011. Click below for more pictures and information.
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1st Annual SCIACT Twilight Gala is a Success!
Bill Mancini posted Feb 2010
I would just like to thank everyone for helping out and attending the first Annual Twilight Gala. Overall the event was a tremendous success. For a first time out event the final total is not what is important. Its the enthusiasm and support everyone showed. From the hard work the committee did to the support we got from the Marriott the night of the event. I could not ask for anything more.
- Bill Mancini, V.P. NSCIA CT Chapter
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Soul Legend Teddy Pendergrass Dies After Battle with Colon Cancer
By Suzanne Dixon, MPH, RD, About.com January 14, 2010
Soul singer and legend Teddy Pendergrass has died at age 59, eight months after surgery for colon cancer.Colon cancer was not the only health challenge faced by Pendergrass in his life. In 1982, a car accident left him paralyzed from the waist down.
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Film
Posted August 2009
Filmmaker Jon Sigworth will present two Connecticut screenings of his recently completed SCI documentary “More Than Walking”, August 13 in New Haven and August 31 in Hamden.
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Sold Out Field Comes Out Swinging for SCI
Ellen Franks 11/12/2009
A sold out field of golfers took off on September 15th for the 10th Annual Wheeling and Able Golf Classic at Lyman Orchards in Middlefield. The weather was spectacular, and that in itself is a celebration as the previous two tournaments saw horrific rain! Helen Reeve, Christopher Reeve’s stepmother, was our special guest.
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Tee Up with 'Golfers in Motion'
posted May 2010
Mount Sinai Rehabilitation in
collaboration with Wintonbury Hills Golf Course & Willowbrook Golf Course present an opportunity to Tee up with us!
Golfers In Motion is designed to serve a wide variety of recreational and competitive golfing enthusiasts with physical disabilities.
It is an 8 week program from April 12th - June 14th to be held on Monday afternoons from 1:00––3:00 p.m. at Mt. Sinai Rehab Hospital in Hartford, CT.
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Health-related quality of life among individuals with long-standing spinal cord injury
MedWorm: Consumer Health News Jan 04, 2010
The study findings showed that veterans with SCI experienced lower HRQOL than their non-veteran counterparts. A qualitative study is recommended to evaluate why HRQOL was lower in veterans than in non-veterans with SCI although veterans had higher incomes as a result of their pensions and increased access to equipment, and medications.
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Assistive Technology Demo Center Opens in Eastern CT
Posted June 2009
The Eastern Connecticut Assistive Technology Center located at the Windham Regional Community Council, 872 Main Street in Willimantic, CT will open on June 24th! The Connecticut Tech Act Project is very excited to have a new partner agency offering Assistive Technology demonstrations in the Eastern Region of Connecticut.
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SCI / MS Research Study
You may be eligible to participate. Posted July 2009
- Care Call, a phone-based intervention, aims to reduce health problems and improve quality of life for people with SCI or MS.
-You will not need to travel to take part in this study; you may stay in your home.
-You will receive $100 for your participation and completion of the study.
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