1. NSCIA: What the Newly Injured Can Expect
URL: http://www.spinalcord.org/news.php?dep=27
This section of the NSCIA site is dedicated to the needs of newly injured individuals and their families. Topics covered include Basic SCI
Information, Rehabilitation, Health Care Benefits and Rights, Finding Local Assistance, Publications and Resources, and more. They also have a Resource Center - call the Helpline toll-free at 800-962-9629. “It is good for the newly injured because they could just access information for each stage they are going through w/o having to sift through info they don't need at that moment.”
2. UAB Spinal Cord Injury Information Network: Personal Attendant Services
URL: http://www.spinalcord.uab.edu/show.asp?durki=21
This website offers a listing of online manuals, fact sheets, and books dealing with finding, hiring, and keeping a reliable and trustworthy PCA. A particular favorite link was Preventing Secondary Medical Complications: A guide for personal assistants to people with spinal cord injury. “This not only educates the employees, it also might educate a newly injured individual on some of their needs as well.”
3. Craig Hospital : Educational Brochures
URL: http://www.craighospital.org/SCI/educationalTracts.asp
This site provides information about a wide variety of physical and mental health issues, getting the best medical care, PCAs and caregivers, safety precautions, and many other topics. “I like the fact that this site covers information both for the newly injured and for long term care and concerns.”
4. The Queensland Government: Handbook of Spinal Cord Injuries
URL: http://203.147.140.236/qscis/info_handbook.asp
This Australian website is designed as a clickable on-line manual that provides a comprehensive overview of SCI. The Review Team gives the site high praise as do the Editors. “It still includes the basics, but goes above and beyond. Besides the general articles: bowel, bladder, spasticity, AD, this site also includes articles on: posture, splinting, and contracture. Very cool!”
5. SCI-INFO-PAGES: SCI Health Issues & General SCI Issues
URL: http://www.sci-info-pages.com
This website was created by an individual with 5/6 quadriplegia. The bulk of medical and health information is under the headings SCI HEALTH ISSUES and GENERAL SCI ISSUES. Issues of autonomic dysreflexia, urinary tract infections, and bowel, bladder, and skin care are addressed in a simple but comprehensive manner. One particularly useful resource for those who have regular autonomic
dysreflexia is the printable walle size first aidd. “This is a good site for the newly injured because it answers nearly every question they could have.”
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