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YOUR VOICE COUNTS - Please take and share this important Survey!

Could you help share this very important survey this weekend, as wheelchair user advocates prepare to meet with legislators and wheelchair repair industry representatives for the second time next Tuesday? The more the stories we collect before then the better!

These CT residents have muscular dystrophy, quadriplegia or other injuries....

.... What they don’t always have is wheelchairs that work.

By ED STANNARD | estannard@courant.com | Hartford Courant

Maureen Amirault has muscular dystrophy and has used a specialized wheelchair for about 2½ years.

She’s been waiting for it to be repaired for most of that time.o“I have a repair issue regarding just being fitted properly to the wheelchair and that has been outstanding since July of 2021,” said Amirault, 46, of Wethersfield.

New Public Hearing Date on Wheelchair Repair

Date/Time: Tuesday, February 28, 2023 at 11:00 A.M. in Room 2E of the LOB and via Zoom

The hearing is on HB 6702 (2023HB-06702-R00-HB.DOCX (live.com) , “right to repair”. This is about the problem of lack of access to timely repair of customized wheelchairs in CT (regardless of payor and regardless of whether under warranty). We need people to tell their stories of problems with getting wheelchairs from one of the two suppliers in the state, severely comprising the independence of our folks and in some cases creating serious dangers to users of this equipment.

CMS Fact Sheet: No Surprises Act

On January 1, the No Surprises Act went into effect, establishing protections against surprise billing and excessive cost-sharing for people who are covered by commercial health plans. CMS has published this fact sheet and updated this webpage to help people understand these protections. Read more about the No Surprises Act

CDC Updates Consumer Mask Webpage

The Centers for Disease Control and Prevention (CDC) has updated its webpage describing the types of masks and respirators used to prevent transmission of COVID-19 to help people determine which options are best for them. The updated page lays out the protection provided by available masks and respirators, noting that some types of masks and respirators provide better protection than others. 

Essential Information on the Covid19 Omicron Variant

The Omicron variant spreads more easily than the original virus that causes COVID-19. Here are 3 things you can do to help protect yourself and others:

  1. Get the COVID-19 vaccine, if you haven't already. 
  2. Get the booster when you're fully eligible. 
  3. Continue wearing a mask.

Exercise and Fitness after Spinal Cord Injury Video Wins Silver Telly Award

We are excited to announce that the MSKTC video entitled Exercise and Fitness after SCI is a Silver winner of 40th Annual Telly Awards in 2019. Established in 1979, The Telly Awards is the premier award honoring video and television across all screens, which selects winners from more than 12,000 entries across the U.S. and around the world.

Hospital for Special Care Cord Connections: Adapted Vehicles June 21

Tim Fournier, the SCIACT Chapter Vice-President, who also works for Advanced Wheels will be presenting at this support group. He will discuss products, processes, answer questions and have adapted vehicles available for viewing. All members are welcome to attend!!